Sat. Mar 2nd, 2024
alert-–-parents-of-disabled-wrexham-fan,-four,-are-‘blown-away’-after-owners-ryan-reynolds-and-rob-mcelhenney-donate-10,000-so-they-can-adapt-their-homeAlert – Parents of disabled Wrexham fan, four, are ‘blown away’ after owners Ryan Reynolds and Rob Mcelhenney donate £10,000 so they can adapt their home

The parents of a disabled four-year-old suffering with a rare brain disorder have been left ‘blown away’ after receiving a £10,000 donation from Ryan Reynolds and Rob McElhenney to adapt their home to suit his needs.

Aaron and Charlotte Perrin’s son Louis was born with a genetic condition called TUBA1A, which causes him to have painful leg spasms, limited mobility, epilepsy and cerebral palsy.

Louis is a keen supporter of Wrexham AFC and his parents were ‘shocked’ to see a £10,000 donation on their fundraising page from the club’s owners on Friday, to help towards adapting their home in the city.

Mrs Perrin, 32, who works in the emergency services, revealed: ‘Louis’ carer screenshotted the donation page and was like, ‘oh my God, look at that’, and then I tried to get in touch with my husband.’

Mr Perrin, 32, who is a headteacher, added: ‘I was at work and was sitting in the staff room and saw I had two missed calls from Charl and then a message from one of my governors saying, ‘have you seen this?’ 

Aaron and Charlotte Perrin's son Louis was born with a genetic condition called TUBA1A (Charlotte and Louis pictured together)

Aaron and Charlotte Perrin’s son Louis was born with a genetic condition called TUBA1A (Charlotte and Louis pictured together)

Louis is a keen supporter of Wrexham AFC and his parents were 'shocked' to see a £10,000 donation on their fundraising page from the club's owners

Louis is a keen supporter of Wrexham AFC and his parents were ‘shocked’ to see a £10,000 donation on their fundraising page from the club’s owners

Ryan Reynolds and Rob McElhenney donated the sum to help towards adapting their home in the city

Ryan Reynolds and Rob McElhenney donated the sum to help towards adapting their home in the city

‘I couldn’t contain it; I just told everyone in work straight away.

What is TUBA1A

TUBA1A is a rare brain disorder that affects less than 200 children in the world. 

 Suffers of the condition are visually impaired and struggle to walk. 

Tragically, those with the condition commonly have a life expectancy of just ten years.  

‘We were all amazed and so pleased and we’ve had friends ringing and crying on the phone.

‘We were totally blown away by their generosity really; we were just in shock.’

It’s not the first time that Wrexham’s owners have gone above and beyond to support the football club’s community since purchasing it in 2020. 

Last year, terminally-ill Wrexham fan Jay Fear was welcomed by Ryan Reynolds to see the team promoted to the football league earlier this month alongside his wife Deb, daughter Jess and son Sam.

After his meeting, Jay sadly passed away and Reynolds penned an emotional tribute. 

He said: ‘So grateful to have spent time with Jay Fear. He didn’t have much of it left and the fact he shared that time so freely with others is something I’ll never take for granted and never forget. This man lived.’ 

Later that year, Wrexham star Anthony Forde hailed Ryan Reynolds for his incredible gesture for his wife Laura.  

Irish full-back Forde saw his life turned upside down when Laura was diagnosed with a brain tumour midway through last season. 

Forde, who joined Wrexham in 2022, took time out of the team and news quickly filtered back from manager Phil Parkinson to Reynolds and co-chairman Rob McElhenney.

Reynolds did not want to sit idly by and see Forde and his wife struggle to make sense of the shocking news – so he organised for them to swiftly get a second opinion.

Last year, Ryan Reynolds granted terminally-ill Wrexham fan Jay Fear a last wish (pictured during their meeting in April)

Last year, Ryan Reynolds granted terminally-ill Wrexham fan Jay Fear a last wish (pictured during their meeting in April)

Reynolds also intervened when Wrexham star Anthony Forde saw his life turned upside down when Laura was diagnosed with a brain tumour

Reynolds also intervened when Wrexham star Anthony Forde saw his life turned upside down when Laura was diagnosed with a brain tumour

Reynolds did not want to sit idly by and see Forde and his wife struggle to make sense of the shocking news - so he organised for them to swiftly get a second opinion

Reynolds did not want to sit idly by and see Forde and his wife struggle to make sense of the shocking news – so he organised for them to swiftly get a second opinion

Speaking this week, The Perrin family said they hope to raise £40,000 to fit a downstairs bedroom with an attached wet room and raise the level in the garden to make it easier for Louis to move from the home to the garden, among other things.

‘We’ve gone through two sets of plans with the local council and there has been no funding available due to the cost of the project, so to see the community donate, it has given us more hope that we are going to achieve our target,’ Mr Perrin said.

READ MORE:  Ryan Reynolds’ brilliant gesture for wife of Wrexham star after she was diagnosed with an inoperable brain tumour

Mrs Perrin added: ‘We just want him to be as independent and safe as he can be at home, and at the moment we have loads of temporary equipment, which can be a challenge as he is continuing to grow.’

Mr Perrin said although his son is not aware of the impact the donation from the Wrexham AFC owners will have on the family, he ‘loves being the centre of attention’.

Mrs Perrin added: ‘He was on the front of a local paper last week and we have it at home and whenever anyone comes over to the house, he points it out to them.’

Both Mr and Mrs Perrin spoke about how much joy football brings to their son.

Mr Perrin said: ‘When he was a baby, he would watch football on the TV a lot and its been brilliant for me as a dad to watch him be taken in by the colours, the noise and the cheering.

‘Even though his speech is quite delayed, he was able to chant and cheer and it’s really helped him a lot with his speech and language.’

Mrs Perrin added he will often spin his wheelchair around in the middle of watching football matches and scream with joy.

‘He just feels the atmosphere and I just love sitting and watching him at the matches because he is in his element,’ she said.

On March 23, Wrexham Police FC – which is made up of members of North Wales Police who play off-duty – are to take on North Wales Dragons for a charity match to continue raising money for Louis’ fundraiser.

Mr Perrin said Louis is to attend and thanked Wrexham Police FC for publicising the cause.

‘I think it really was because of them that Ryan and Rob got involved and it was also so nice to see other celebrities like Nick Knowles leave messages of support,’ he added.

‘By sharing our story, we also hope to show that we are not a unique case.

‘There’s so many families with either half finished builds or they have not started building at all and they’re selling up or having to give up work to care for their disabled children as they cannot access funding.’

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